GlobalSkin Conference 2025 – Representing the Ichthyosis Community on the World Stage Prague, 24–27 April 2025 **GlobalSkin (the International Alliance of Dermatology Patient Organisations)** is a global network that brings together patient groups from around…
As a supporter you can raise free donations simply by shopping online using Give as you Live. Shop at over 4,000 leading online stores including Amazon, eBay, Tesco, John Lewis, Sainsburys, Just Eat and thetrainline,…
Our website enables you to fundraise online simply and quickly. In an increasingly cashless society it’s important to be able to collect sponsorship and donations online. It also takes the hard work out of having…
In this film, members of the Ichthyosis Support Group (ISG), alongside medical professionals and researchers, share why the charity is such an important part of life for people affected by ichthyosis. For many individuals and…
Phaedra Longhurst is a postgraduate Masters (MSc) student at the University of South Wales. Phaedra is conducting a qualitative study which aims to explore people’s experience and their understanding of Body Image Dissatisfaction in association…
Recruitment to this study is closed. Living with a skin condition is difficult, but how many people acknowledge the emotional and psychological impact it has on the person affected and their loved ones? Scott Thomas,…
Increase Sales by Supporting Your Favourite Charity, the ISG Support us every time you sell items on eBay. Items that benefit charity may sell faster, even at a premium price! Donate 10% or more and…
The Ichthyosis Support Group is registered with easyfundraising, allowing you to raise funds for us at no extra cost while shopping online. Over 7,000 brands will make donations when you shop through easyfundraising. Simply sign…
Our England-Wide Ichthyosis Study Made Possible Through ISG Research Grant – Dr Mark Eisner I had the privilege to attend the recent ISG Family Conference with my supervisor Professor Neil Rajan, at the Imperial War…
Members joined us on Zoom for 2 1 hour discussion sessions about Ear Care in Ichthyosis, held at 10.00am and 5.00pm. Independent ENT Nurse Practitioner, Jo Outhwaite, (previously from Birmingham Children’s Hospital) shared her expertise…
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Events, research and stories from the ISG community, about once a month.
