Caring for your feet with ichthyosis On Thursday, 16th June 2022 an online session was hosted by the ISG with Trustees present: Mandy Aldwin-Easton, Sarah Griffiths, and Sue Corbett. Medical Professionals offering their expert knowledge:…
This was a virtual event with registered ISG members in the company of Andrew Thompson [Professor of Clinical Psychology (Hons.), Programme Director (DClinPsy)] of Cardiff & Vale University, and Olivia Hughes (PhD Student) on Sunday,…
ASHBURN, Va., Oct. 24, 2023 (GLOBE NEWSWIRE) — Quoin Pharmaceuticals Ltd. (NASDAQ: QNRX) (the “Company” or “Quoin”), a specialty pharmaceutical company focused on rare and orphan diseases, announces additional positive clinical data from its ongoing…
Well done on your fundraising, you are amazing – thank you! You don’t want cash hanging around in your home or workplace, it’s time to get your money to the ISG and there’s lots of…
BioCryst Pharmaceuticals has provided the following update about their BCX17725 program. The Ichthyosis Support Group (ISG) will continue to provide updates as we learn more about this program. Update from BioCryst Pharmaceuticals About BCX17725 Program…
On 29th July 2022 we held an online webinar with 54 individuals and families from around the world. There was a 2 part presentation plus question and answer sessions, and you can watch these below…
Rare diseases are only rare if you don’t live with one. ® Quoin Pharmaceuticals Ltd. is a clinical stage specialty pharmaceutical company. Our team is relentlessly focused on the development and commercialization of innovative therapeutic…
Update 2012 Gene therapy for inherited skin disease Netherton syndrome We have been developing gene therapy for the inherited skin disease Netherton syndrome. The therapeutic process involves taking skin stem cells from a patient with…
We were delighted and extremely proud to announce that the Ichthyosis Support Group (ISG) won the National Lottery Award for the Best Project in the Health category. The BBC spent Thursday 15th August 2013 with…
Study Name: The role of attributions, shame, and self-compassion on the mental health of individuals with facial differences. About the Researcher: Joel Moxey is 21 years old student studying at Anglia Ruskin University. Joel was…
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Events, research and stories from the ISG community, about once a month.
