Leaving a Legacy of Hope: A Gift in Your Will for the Ichthyosis Support Group Planning for the future is one of the most powerful ways we can leave a lasting impact. By remembering the…
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Update March 2020 Have you had a confirmed diagnosis of Lamellar ichthyosis? Are you 18 or over? If you are a parent, is your child 12 or over? Does your Lamellar ichthyosis present with large…
JustGiving enables you to fundraise online quickly and simply. JustGiving is dedicated to giving you the technology you need to raise more to help us support individuals and families living with ichthyosis. With JustGiving you…
We are incredibly proud to share the inspiring journey of Lee, ISG Treasurer, who recently pushed himself to the limit by completing an ultra marathon in honour of the ichthyosis community. Lee’s determination, resilience and…
Ichthyosis vulgaris research update ~ Dermatology & Genetic Medicine, Dundee Filaggrin gene discovery The research group in Dundee, Scotland, led by Professor Irwin McLean first discovered the changes in the filaggrin gene that cause ichthyosis…
Ichthyosis Support Group Research Grant Introduction The Ichthyosis Support Group (ISG) was formed in 1997 by a group of individuals affected by ichthyosis to create a network of parents, sufferers and interested doctors and nurses.…
Over the summer and early autumn months, Mandy, our Medical and Communications Manager on behalf of the Ichthyosis Support Group (ISG) proudly represents our community at major national and international dermatology events. These meetings are…
Written by Cat Lancashire, ISG Ambassador We all know that travelling aboard can be stressful at times but add medical conditions into the mix and things can get even more complicated. Our son was born…
A guide to the new ichthyosis and palmoplantar keratoderma naming system – Epidermal Differentiation Disorders (EDDs) This article explains the recent changes in how we name some inherited skin conditions. This includes conditions like the…
A recent study published in the Orphanet Journal of Rare Diseases indicates that for adults with congenital ichthyosis, skin severity and its impact on quality of life generally decrease over time due to more effective,…
