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Do you have questions about your own or your child’s ichthyosis?  Please contact us on our confidential Helpline.

Our Helpline number is 0800 368 9621 (free from landlines and mobiles in the UK).  If we are unable to take you call please leave a message and a member of our team will call you back as soon as possible.

You can email us on isg@ichthyosis.org.uk where we will respond to emails as quickly as we can.

You can also complete an online form to contact us. Click here to go to the form our online form. We will reply as soon as we can.

We look forward to hearing from you.

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Ichthyosis and Epidermal Differentiation Disorders: What the New Term Means For You?

A guide to the new ichthyosis and palmoplantar keratoderma naming system – Epidermal Differentiation Disorders (EDDs) This article explains the recent changes in how we name…

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