Some members share their fundraising or awareness activity stories in the media, it’s a great way to educate people about ichthyosis.
If you are organising an event or would like raise awareness of living with ichthyosis please complete our form to send us some details.
In this section
Tell Your Story
Would you like to tell your story in the media? – Why not consider being a Case Study?\ By raising awareness of…
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Read more Case studies
These are a collection of members whose fundraising and awareness raising activities and events have been featured in the media. 
