Caring For Ichthyosis

Online Discussion Sessions

Here you will find comprehensive summaries of our online discussion sessions and information about upcoming discussions.These sessions are organised and brought to you by a team of experts and the Ichthyosis Support Group, all of whom give their time and share their knowledge voluntarily.

Summary of Eye Care and Management Online Discussion Session

Summary of Eye Care and Management Online Discussion Session

ISG Zoom Meeting with registered ISG members in the company of Mr Raman Malhotra (Consultant ophthalmic and oculoplastic surgeon of…
1 October 2026
Summary of Hair and Scalp Care Discussion Session

Summary of Hair and Scalp Care Discussion Session

On Saturday 8th May 2021 the online video call was started at 10.00am and the medical team introduced to approximately…
1 October 2026
Webinar: Ichthyosis is not just a bit of dry skin – focus on X-linked ichthyosis

Webinar: Ichthyosis is not just a bit of dry skin – focus on X-linked ichthyosis

We know the ichthyoses are a group of rare genetic skin conditions characterised by extremely dry scaly skin and that…
1 October 2026
Psychological and Psychosocial Impact of Living with Ichthyosis

Psychological and Psychosocial Impact of Living with Ichthyosis

This was a virtual event with registered ISG members in the company of Andrew Thompson of Cardiff & Vale University,…
1 October 2026
Q & A Podiatry Session

Q & A Podiatry Session

Caring for your feet with ichthyosis On Thursday, 16th June 2022 an online session was hosted by the ISG with…
1 October 2026
Recording of Epidermolytic ichthyosis (EI, EHK, KPI, BIE) Presentation and Q&A

Recording of Epidermolytic ichthyosis (EI, EHK, KPI, BIE) Presentation and Q&A

Epidermolytic ichthyosis (EI, EHK, KPI, BIE) Presentation and Q&A Zoom session 18 November 2022 Do you have questions about Epidermolytic…
1 October 2026
Skincare Treatment: Managing stress and resistance in children and young people webinar

Skincare Treatment: Managing stress and resistance in children and young people webinar

Managing Treatment Resistance and Stress in Young People with Ichthyosis Zoom session 15 September 2022 On-line Q & A session…
1 October 2026
Summary of Ageing with Ichthyosis Discussion

Summary of Ageing with Ichthyosis Discussion

This online discussion session with Dr Will Davies (Senior Lecturer, Division of Psychological Medicine and Clinical Neurosciences, Cardiff University), Georgina…
1 October 2026
Netherton Syndrome Presentation and Q&A

Netherton Syndrome Presentation and Q&A

On 29th July 2022 we held an online webinar with 54 individuals and families from around the world. There was…
1 October 2026
Summary of Ear Care in Ichthyosis Discussion Sessions

Summary of Ear Care in Ichthyosis Discussion Sessions

Members joined us on Zoom for 2 1 hour discussion sessions about Ear Care in Ichthyosis, held at 10.00am and…
1 October 2026
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Ichthyosis and Epidermal Differentiation Disorders: What the New Term Means For You?

A guide to the new ichthyosis and palmoplantar keratoderma naming system – Epidermal Differentiation Disorders (EDDs) This article explains the recent changes in how we name…

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