You must be a member and register in advance to attend any of our events. Dates for all types of events will be announced, so please keep an eye on your emails for more details,…
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A Dermatologist’s Perspective for People and Families Living with Ichthyosis If you or your child has ichthyosis, long waits for dermatology referrals or appointments can be frustrating and worrying. Dermatologists understand how vital specialist care…
We are incredibly proud to share the inspiring journey of Lee, ISG Treasurer, who recently pushed himself to the limit by completing an ultra marathon in honour of the ichthyosis community. Lee’s determination, resilience and…
In this film, members of the Ichthyosis Support Group (ISG), alongside medical professionals and researchers, share why the charity is such an important part of life for people affected by ichthyosis. For many individuals and…
A recent study published in the Orphanet Journal of Rare Diseases indicates that for adults with congenital ichthyosis, skin severity and its impact on quality of life generally decrease over time due to more effective,…
A guide to the new ichthyosis and palmoplantar keratoderma naming system – Epidermal Differentiation Disorders (EDDs) This article explains the recent changes in how we name some inherited skin conditions. This includes conditions like the…
Written by Cat Lancashire, ISG Ambassador We all know that travelling aboard can be stressful at times but add medical conditions into the mix and things can get even more complicated. Our son was born…
