Latest / Films and media

Case studies

These are a collection of members whose fundraising and awareness raising activities and events have been featured in the media.

Maldon toddler with potentially fatal skin condition raise money for support group

Maldon toddler with potentially fatal skin condition raise money for support group

Family of Maldon toddler with potentially fatal skin condition raise money for the Ichthyosis Support Group A family are getting…
1 October 2026
Little Ellie really is one in a million…

Little Ellie really is one in a million…

Brave Ellie Luther gives a big smile to show just what a little fighter she is As the five-year-old plays…
1 October 2026
Chelmsford School Children Dress Loud and Lairy For Charity

Chelmsford School Children Dress Loud and Lairy For Charity

Chelmsford School Children Dress Loud and Lairy For Charity CHILDREN at Westlands Community Primary School banded together last week to…
1 October 2026
Father-in-law saves Melanie’s charity walk 2010 – This is Lancashire

Father-in-law saves Melanie’s charity walk 2010 – This is Lancashire

Father-in-law saves Melanie’s charity walk When poorly Melanie Bradley asked her father-inlaw to support her with a sponsored event, she…
1 October 2026
Joanna and Charlie

Joanna and Charlie

Case studiesJoanna and CharlieShare this pageLatestUpcoming Member Events in 2026How Ichthyosis Changes as We Age: Key Takeaways From a New…
1 October 2026
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Ichthyosis and Epidermal Differentiation Disorders: What the New Term Means For You?

A guide to the new ichthyosis and palmoplantar keratoderma naming system – Epidermal Differentiation Disorders (EDDs) This article explains the recent changes in how we name…

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