Member Events

We hold exclusive events for members of the Ichthyosis Support Group. These include Family Conferences, Family Days, Children’s Camps and varied exciting events online.

We are busy planning events so please follow us on social media to be the first to hear about event announcements.

To attend and receive full details about our events you must be a member. Please become a member at Become A Member Form

If you are a member please check your spam folders for our emails, because sometimes they can end up in there and you may miss our news and updates!

Reflections on the ISG Family Conference 2025

Reflections on the ISG Family Conference 2025

We were thrilled to have 45 families register for our Family Conference at IWM Duxford, Cambridgeshire, representing a rich mix…
1 October 2026
Children’s Activity Camps

Children’s Activity Camps

What to expect ISG Children’s Activity Camps are friendly residential weekends, and we usually hold 2 a year somewhere in…
1 October 2026
A round up of our 2024 events

A round up of our 2024 events

During 2024 the Ichthyosis Support Group (ISG) has hosted a variety of events aimed at supporting everyone affected by ichthyosis,…
1 October 2026
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Ichthyosis and Epidermal Differentiation Disorders: What the New Term Means For You?

A guide to the new ichthyosis and palmoplantar keratoderma naming system – Epidermal Differentiation Disorders (EDDs) This article explains the recent changes in how we name…

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