ISG Zoom Meeting with registered ISG members in the company of Mr Raman Malhotra (Consultant ophthalmic and oculoplastic surgeon of Queen Victoria Hospital, West Sussex) on Saturday 17 April 2021 The ISG were joined by…
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On Saturday 8th May 2021 the online video call was started at 10.00am and the medical team introduced to approximately 30 of our members who had registered to join this virtual meeting. The team who…
We know the ichthyoses are a group of rare genetic skin conditions characterised by extremely dry scaly skin and that there are over 30 different types. All types of ichthyosis can have a psychological impact…
This was a virtual event with registered ISG members in the company of Andrew Thompson [Professor of Clinical Psychology (Hons.), Programme Director (DClinPsy)] of Cardiff & Vale University, and Olivia Hughes (PhD Student) on Sunday,…
Caring for your feet with ichthyosis On Thursday, 16th June 2022 an online session was hosted by the ISG with Trustees present: Mandy Aldwin-Easton, Sarah Griffiths, and Sue Corbett. Medical Professionals offering their expert knowledge:…
Epidermolytic ichthyosis (EI, EHK, KPI, BIE) Presentation and Q&A Zoom session 18 November 2022 Do you have questions about Epidermolytic ichthyosis (EI, EHK, KPI, BIE)? Do you want to know more about it? Whether you…
Managing Treatment Resistance and Stress in Young People with Ichthyosis Zoom session 15 September 2022 On-line Q & A session with Dr Rukshana Ali (Paediatric Clinical Psychologist) and Dr Susannah Baron (Consultant Paediatric Dermatologist) both…
This online discussion session with Dr Will Davies (Senior Lecturer, Division of Psychological Medicine and Clinical Neurosciences, Cardiff University), Georgina Wren (research student, Cardiff University), Mandy Aldwin-Easton (Director and founder member ISG), Sarah Griffiths-Little (ISG…
On 29th July 2022 we held an online webinar with 54 individuals and families from around the world. There was a 2 part presentation plus question and answer sessions, and you can watch these below…
Members joined us on Zoom for 2 1 hour discussion sessions about Ear Care in Ichthyosis, held at 10.00am and 5.00pm. Independent ENT Nurse Practitioner, Jo Outhwaite, (previously from Birmingham Children’s Hospital) shared her expertise…
