During 2024 the Ichthyosis Support Group (ISG) has hosted a variety of events aimed at supporting everyone affected by ichthyosis, from those newly diagnosed to long-term sufferers. Whether you are a parent of a one-month-old…
Now you have decided to raise funds in aid of the ISG, decide what your activity is going to be and become part of TeamISG. You could have a silent auction, coffee morning, bring and…
Research Notice: Validation of a needs assessment tool for caregivers of children with ichthyosis Carleen Walsh invites caregivers of children affected by ichthyosis to test a new needs assessment e-tool to make sure it is…
Do you have Ichthyosis vulgaris or are a male with X linked ichthyosis, or are a female carrier of X linked ichthyosis? Researchers at Cardiff University are conducting a survey into the experience of distress…
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Events, research and stories from the ISG community, about once a month.
