Little Ellie really is one in a million…

By 1 October 2026Case studies1 min read

Case studies

Little Ellie really is one in a million…

Brave Ellie Luther gives a big smile to show just what a little fighter she is

As the five-year-old plays in her garden, she’s blissfully unaware she has a one-in-a-million skin condition which could kill her.

Ellie, from South Shields, is one of just a handful of children with Harlequin ichthyosis, a condition so extreme doctors had difficulty diagnosing it.

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A guide to the new ichthyosis and palmoplantar keratoderma naming system – Epidermal Differentiation Disorders (EDDs) This article explains the recent changes in how we name…

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