X linked ichthyosis personality survey

By 1 October 2026Participate in research2 min read

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X linked ichthyosis personality survey

Recruitment to this study is closed.

Researchers are looking for males with X linked ichthyosis or their non affected brothers to take part in a short online survey looking at personality.

We are currently trying to undertake the largest survey in the world to assess behaviour in individuals with X-linked ichthyosis and their non-affected brothers.

If you, your brother, or your son has been diagnosed with X-linked ichthyosis, and you are over the age of 18, we would be grateful if you could complete the following short survey https://qtrial2015q4az1.az1.qualtrics.com/SE/… which should take 25-30mins.

Many thanks!
Sohini Chatterjee and Dr William Davies, Cardiff University

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