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Support Our Work

Volunteer

Would you like to join the committee or maybe become part of our Support Team? Maybe you are a parent, sufferer, or have experience of working in a specific field that you would like to use in the 3rd sector, such as fundraising, media and communications, book keeping, publicity, marketing and many other areas – if so we would be delighted to hear from you!

By becoming a volunteer for the ISG you could develop existing skills and experience.  You could volunteer at one of our annual events or children’s residential camps, co-ordinate collection tins or become a local ambassador for ichthyosis.

Our range of volunteering opportunities and flexible approach mean that you decide exactly how and where you give your time.

We’d love to hear from any willing volunteers, please register your interest and we will contact you to have a friendly chat about how you may volunteer for the ISG.

Why Volunteer?

We want to make sure that you get as much out of your volunteer experience as we do.

Becoming an ISG volunteer is great for:

  • Boosting your confidence and self-esteem
  • Developing your skills
  • Gaining meaningful experience
  • Making new friends and connecting with your ISG community
  • Enhancing your wellbeing

Why not have a look at what it might involve and download an information pack here:

ISG Volunteer policy

ISG Volunteer agreement

ISG Volunteer application form

Confidentiality Agreement Form ISG

Confidentiality policy ISG

Guide to being a Trustee

The Essential Trustee – What you need to know

Charity Governance Code

If you are interested in becoming more involved please call us for a chat or complete the register your interest form below.

Register Your Interest

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Ichthyosis and Epidermal Differentiation Disorders: What the New Term Means For You?

A guide to the new ichthyosis and palmoplantar keratoderma naming system – Epidermal Differentiation Disorders (EDDs) This article explains the recent changes in how we name…

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