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Freephone helpline for anyone affected by ichthyosis.

Call 0800 368 9621

Understand ichthyosis

Types, causes, treatments and day-to-day care.

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Whatever help you need, we and other relevant organisations are here for you.

Visit these sections of our website to find more support.

What is ichthyosis?

Caring for ichthyosis

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Postal Address
If you need our postal address please call us on 0800 368 9621.

+44 (0800 368 9621)
isg@ichthyosis.org.uk

In this section

Become a member

The Ichthyosis Support Group (ISG) is committed to supporting individuals and families in the UK affected by ichthyosis and related conditions. Becoming…

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Member stories

These are a collection of personal stories of living with ichthyosis by our members. These stories feature many types of ichthyosis from…

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Faces of Ichthyosis

Every face tells a story, and in ichthyosis, no two stories are the same. Some may be familiar with how ichthyosis looks,…

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Sharing Stories, Raising Awareness: Our Exciting Podcast Partnership with BDNG

We are delighted to have a partnership with the British Dermatological Nursing Group (BDNG) to amplify the voices of those living with…

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Contact Us

Helpline Do you have questions about your own or your child's ichthyosis? Please contact us on our confidential Helpline. Our Helpline number…

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Other sources of help

Other charities and organisations offering support you may find helpful. Ichthyosis Support Group on Facebook Join us on Facebook Ichthyosis Support Group…

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Need to talk?

Our freephone helpline is here for anyone affected by ichthyosis.

Call 0800 368 9621Send us a messageJoin the ISG

Ichthyosis and Epidermal Differentiation Disorders: What the New Term Means For You?

A guide to the new ichthyosis and palmoplantar keratoderma naming system – Epidermal Differentiation Disorders (EDDs) This article explains the recent changes in how we name…

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